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EPISODE SUMMARY:
The audience will look at how Medication Resistant Epilepsy can sometimes lead patience to do the necessary steps of inserting Vagus Nerve Stimulators into the brain through surgical means.
On this episode of Frank About Health we talk again with Jeff Demitrack and a patient who goes by only his first name to maintain privacy as he will discuss his experience with Vagus Nerve Surgery to deal with his recurrent seizures.
We will learn more details about the Vagus Nerve and the power it has in our brains along with those suffering from seizures. We will hear the story of Jessie's journey towards stopping his ongoing medication resistant seizures. We will learn about the success he has had with this procedure and see how he manages his quality of life.
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Frank Harrison is joined by returning guest Jeff Demitrack on this episode of Frank About Health. They will be discussing Medication Restraint Epilepsy, how it can sometimes lead to inserting a Vagus Nerve Stimulator into the brain, and the overall power of the Vagus nerve Stimulator. To start the conversation, they look at a case study of someone who has experience with the Vagus Nerve surgery. Due to privacy, he wishes to just be called Jesse. He is diagnosed with epilepsy, which in some cases does cause nocturnal seizures (having seizures while sleeping). Jesse was also diagnosed with epilepsy at a young age, which qualified him to be a participant in the Vagus Nerve Stimulator, which is a surgery for a device that is attached to the heart in order to have control of and reduce different symptoms of epilepsy, but primarily the seizures. Before the stimulators, Jesse took medication like most people who are diagnosed with epilepsy, but eventually, it caused his seizures to get worse and had comorbidities like depression or anxiety because his seizures were happening while he was sleeping. With Jesse’s backstory, he became the perfect candidate for the Vagus Nerve Stimulators to help him be more in control of his condition.
After the first break, Frank, and Jeff dive more into detail about the Vagus Nerve Stimulator, what it does, and how it helps. Individuals who are diagnosed with medical restraint epilepsy or refractory epilepsy are candidates to receive Vagus Nerve Stimulators. Jeff mentions that the Vagus Nerve itself regulates the electrical signals in the brain and is connected to different bodily functions. With those who have epilepsy, the symptoms cause a disturbance to the brain, which is why doctors have made this connection and created this type of treatment to help have less disturbance to the brain. Frank and Jeff return to Jesse’s case study when Jesse receives the stimulator surgery. Medication was not working for him, so the Vagus Nerve Stimulator was an option that was going to work for him. There is not a clear answer as to why some people with epilepsy will reject certain types of medication but with the consistent studying and developing new techniques to help patients cope and manage their condition.
Moving along into the conversation, Frank shows the audience a website full of facts about Sudden Unexpected Death in Epilepsy (SUDEP). Frank explains SUDEP as, “ when a person with epilepsy dies unexpectedly and was previously in their usual state of health.” The death might not be related to a seizure or an accident and even when an autopsy is done, there could be no explanation, however, those whose seizures are poorly controlled are at the highest risk than any other epileptic patient. They bring up SUDEP because Jesse is someone who was at high risk for this, but since he has undergone the Vagus Nerve surgery, his risk of dying from SUDEP is now lower because of the procedure. Frank and Jeff continue to discuss the Vagus Nerve how the stimulators operate and the different functions it has depending on the patient and their needs. They also discuss different techniques and methods that can help people who have the Vagus Nerve Stimulator post-surgery like cold shows, therapy, and meditation for example.
To close the show, Frank thanks Jeff for joining him and for teaching him about the many discussions they have had on the show. Jeff shares his plans moving forward with his advocacy and what he has done to educate others about different aspects of epilepsy. A while back Jeff released a book about epilepsy and the focus on dating and relationships. The audio version of his book, Dating in the Dark, is coming out soon which is very exciting for him. Jeff is also partaking and planning in more epilepsy walks for the Epilepsy Foundation and epilepsy sessions with more authors who write about epilepsy in the future.
00:00:48.340 --> 00:00:51.930 Frank R Harrison: hey, everybody and welcome to today's episode of Frank about health.
00:00:52.120 --> 00:01:00.020 Frank R Harrison: Today is September 20, eighth, 2023, and we are doing a stage of epilepsy show for you today
00:01:00.100 --> 00:01:04.720 Frank R Harrison: with Jeff Demetrik as you recall, our last one was when
00:01:04.819 --> 00:01:13.509 Frank R Harrison: Fuzzy feels lucky, or I rather the title was when Lucky feels fuzzy because it was all about a stage of epilepsy which was auras.
00:01:13.550 --> 00:01:18.349 Frank R Harrison: The particular stage that we're going to discuss today is about vagus nerve stimulation
00:01:18.420 --> 00:01:23.309 Frank R Harrison: in it. We talk about those individuals who are dealing with
00:01:23.470 --> 00:01:40.959 Frank R Harrison: medicine, resistant epilepsy, sometimes known as retractable epilepsy, or they actually go into surgical means to deal with the vagus nerve by installing a vagus nerve stimulator to help in controlling seizure activity either with or without medication.
00:01:41.170 --> 00:01:48.220 Frank R Harrison: This is a form of epilepsy that I luckily I'm not familiar with. But we were going to include
00:01:48.250 --> 00:01:54.949 Frank R Harrison: a case study of someone that Jeff knows goes by the name Jesse. One name only.
00:01:55.010 --> 00:02:05.010 Frank R Harrison: but he, for the for the sake of privacy and even the fact that he's now currently recovering.
00:02:05.360 --> 00:02:09.229 Frank R Harrison: He's not here on the show. But he's here in spirit, and of course, with the
00:02:09.259 --> 00:02:10.800 Frank R Harrison: picture right there.
00:02:12.120 --> 00:02:22.500 Frank R Harrison: Before we go into our discussion, I do wanna issue my disclaimer. This is more of an epilepsy slash medically focused show. I'm here at the Nyu Langone health system.
00:02:22.590 --> 00:02:28.610 Frank R Harrison: And I want to therefore target those individuals watching today's podcast
00:02:28.650 --> 00:02:44.049 Frank R Harrison: that may be suffering or living with epilepsy. This is not to persuade you to get involved in vegas, nerve stimulation. If it is not your your issue that you're dealing with it is to give you additional information that you could take
00:02:44.170 --> 00:02:48.429 Frank R Harrison: to your neurologist or your primary care physician, or whomever you are seeing
00:02:48.470 --> 00:02:57.150 Frank R Harrison: to try to manage your epilepsy, and therefore not to take any of the information as the thoughts of talk radio Dot, Nyc
00:02:57.280 --> 00:02:59.590 Frank R Harrison: or of frank about health, but rather
00:02:59.650 --> 00:03:02.450 Frank R Harrison: conversation between myself and Jeff Dimitrack
00:03:02.470 --> 00:03:11.519 Frank R Harrison: to provide you with insight, both of us living our lives with epilepsy, and I think, Jeff, it's fair to say that you can identify with
00:03:11.530 --> 00:03:15.200 Frank R Harrison: Jesse's situation because you're living your life
00:03:15.520 --> 00:03:22.270 Frank R Harrison: relatively successful with with with medication. But you have been a candidate for vagus nerve surgery. Am I correct?
00:03:22.600 --> 00:03:42.770 Jeff: Yes, and I have intractable epilepsy or refractory epilepsy, uncontrolled seizures. And this is a time when they're all, just usually or many times, they'll say the Vegas nerve stimulator is an option, and it's a a device which they implant into your chest.
00:03:42.770 --> 00:04:00.859 Jeff: and people with medication, resistant epilepsy. It's it's many times an option that they don't know about, and sometimes for people with depression. And I'm going to talk about this as the show goes on, that antidepressants when it doesn't help their depression.
00:04:00.860 --> 00:04:25.239 Jeff: you know. Sometimes it can give them energy, and you know they've been trying to improve the Vegas nerve stimulator for a long time and make it a less invasive surgery. So and hopefully, you know, with the I'm gonna you know, mention some of the rates of depression, and how it's increased, you know, over the years, and
00:04:25.240 --> 00:04:35.909 Jeff: you know, maybe it can be a option for for them, you know, as a and as the improvements go on for the biggest nurse stimulator.
00:04:36.330 --> 00:04:52.820 Frank R Harrison: right? Right? So, ladies and gentlemen, this particular episode is almost gonna be a webinar. So in Section 2, we'll learn more about the vagus nerve stimulator, we'll learn about some of its aspects, both in terms of side effects as well as the surgery that's involved.
00:04:52.910 --> 00:04:59.580 Frank R Harrison: We'll learn more about the case of Jesse. In the third segment. We're going to talk about Sudep. Sudden
00:04:59.910 --> 00:05:00.750 Frank R Harrison: death.
00:05:00.920 --> 00:05:25.900 Jeff: unexpected or unexplained death in epilepsy and October. It's we're, it's awareness, month for sudip. And so you'll see a lot of it on social media and a other podcast will be talking about sudup as well. And they'll have doctors on answering questions about Sudip and there's risk factors for Sudo.
00:05:25.900 --> 00:05:50.259 Jeff: And there's a you know a lot of questions that you know. Maybe the doctors can't even answer about Sudup, because, you know, sometimes they they don't even even know if it's actual case of sudup or a partial suit up. Maybe you know they didn't. It was because of something else, or you know. So they they're still kind of defining the term
00:05:50.420 --> 00:05:57.249 Jeff: it's not a ex exact. It's kind of a work in progress, almost
00:05:57.460 --> 00:06:15.090 Frank R Harrison: correct. And so, luckily we have a full hour to really flesh all the key points out there for those of you interested in in next month, which is good as you said, suit up awareness month. And also we'll close the show. Really summarizing, I think, Jeff, this is your tenth episode on Frank about health.
00:06:15.420 --> 00:06:20.800 Jeff: So happy anniversary for that mentioned. And so we'll talk about
00:06:21.060 --> 00:06:50.489 Frank R Harrison: exactly some of the some of the latest things you're working on. So we'll also pay tribute to you towards the end of the show. But for that reason alone I want all of you out there who are watching, whether it is on or listening on talk radio, dot, Nyc or watching on Facebook, Youtube, Linkedin or twitch TV. If you wanna ask any questions, live, you are free to do so. Behind the scenes. Our engineer is taking questions, and will be able to answer them in real time
00:06:50.680 --> 00:07:00.580 Frank R Harrison: simultaneously. If any of you, after the show or are watching this as a recorded show. Want to send an email to myself. You can at Frank R. Harrison, one at Gmail Com.
00:07:00.660 --> 00:07:04.120 Frank R Harrison: or they can reach you on your Instagram. Is that correct, Jeff?
00:07:04.440 --> 00:07:12.039 Jeff: Yes. My Instagram or my Facebook stages of epilepsy. Those are usually the best ways to reach me.
00:07:12.520 --> 00:07:27.299 Frank R Harrison: Okay, great. So that all being said, we're just already recapped what the show is about. And again, this is food for thought for you to digest accordingly, with your doctor of choice, and
00:07:27.310 --> 00:07:30.119 Frank R Harrison: act accordingly. All right, that all being said.
00:07:30.440 --> 00:07:36.009 Frank R Harrison: welcome back to Frank about health, Jeff, and why don't you share the story of Jesse.
00:07:36.880 --> 00:07:49.319 Jeff: Oh, the story of Jesse. Okay. So he has nocturnal seizures. And he was diagnosed around the same time as me, or about 11 years old. I was diagnosed there around 10.
00:07:49.320 --> 00:08:12.709 Jeff: So usually, that's a a candidate, for when you're diagnosed in childhood. That's a candidate for Vegas nerve. And you, when you've been had uncontrolled seizures for a long time, and it also puts you at risk for Sudep as well. So when you've had a lot of injuries. You've had nocturnal seizures. You have seizures at night.
00:08:12.710 --> 00:08:28.409 Jeff: Me that that means having users at night, because and it, he has lived alone. I I've also lived alone in apartments. So you know it. That's another risk factor. And I'll mention that when I go through the risk factors of Sudip
00:08:28.410 --> 00:08:51.179 Jeff: but he he he decided to go forward with the Vegas nerves device. And it's a around around here and you receive a whole package with a magnet that you rub over the device to turn it on and off. You know, if you want more stimulation. You could put the magnet on it.
00:08:51.180 --> 00:09:06.880 Jeff: and that's and when he's having a seizure, maybe a friend of his or a family member, you know, it can put the magnet over the device, and it is, supposedly, if it device is activated
00:09:06.880 --> 00:09:11.979 Jeff: it it will, you know, maybe stop the seizure hopefully and
00:09:12.000 --> 00:09:32.930 Jeff: but it doesn't necessarily work for everyone, and a lot of people need to stay on their medications. And that's something to keep in mind for people considering it, because, you know. Yes, there is no cure for epilepsy, but they they think it will significantly reduce their seizures, and sometimes it doesn't.
00:09:32.930 --> 00:09:54.009 Jeff: Yeah, but there is a another positive to it that Jesse said to me that oh, well, it has improved my energy so and you know, with all the side effects of anti convulsions, with people being sleepy all day, not being able to focus. And you know that that is a a big positive, you know. So
00:09:54.640 --> 00:10:01.180 Frank R Harrison: so. But I mean, you said he was diagnosed around 11, and I gather that was what 2030 years ago, somewhere in there.
00:10:01.180 --> 00:10:26.069 Jeff: He he's around my age. I think he's even a couple of years older than me. Actually so. And I'm 42, and I think he's a II wanna say 45. But I'm not really sure. II gotta, you know, see all the details. You know, he was gonna be on the show. But you know, he he has more seizures than I do. I mean, I have seizures every month, and I mean II actually had a pretty bad week.
00:10:26.070 --> 00:10:48.309 Jeff: So I don't. I mean that yours was correlated to the bad weather we've been having for the last 5 days. That was a lot of times when there's storms. And there's a Yeah, II feel a little funny. And yeah, so it does play on the mood, and then people call it seasonal, affective disorder for those that are not dealing with epilepsy. But can you imagine
00:10:48.310 --> 00:10:54.289 Frank R Harrison: if you're feeling depressed and that could serve as a trigger for those that are living with epilepsy. I can imagine that.
00:10:54.340 --> 00:10:58.400 Frank R Harrison: III think it was. Ophelia was the name of that storm. But
00:10:58.420 --> 00:11:20.989 Jeff: she was not a fun. No, it was pretty bad here on the East coast, and a lot of people, you know, of course. If you have pets it's not easy, too, you know. You gotta get your pets out, and that, that's always a struggle. But any storm front. You know, people with epilepsy, they say, oh, it definitely affects them.
00:11:21.530 --> 00:11:32.440 Frank R Harrison: Well, because that's a brainstorm that's constantly going on, especially with individuals with refractory epilepsy. So that being said, for how many years was he dealing with, I mean, can you even run through
00:11:32.450 --> 00:11:49.070 Frank R Harrison: the different stages in his life where he had different medications diagnosed. How many was he on? How did they discover that he was no longer really a candidate to even use medicine? That this became, you know, the the vagus nerve surgery became the solution for him to consider.
00:11:49.800 --> 00:12:13.160 Jeff: Well, I he had to stay on his medications, unfortunately, and he was on 3 medications very similar to my case. I'm on 3 main medications, and I have emergency medication as well. That's La raza Pam, in case I feel a seizure coming on. I don't always get a an or but I'll take Laurazam when I do.
00:12:13.230 --> 00:12:37.349 Jeff: and it makes the seizure less severe. I see we're gonna go on break soon, but I'll finish this thought about Jesse. Yeah, he had to continue taking his medications. And yeah, just the it was a kind of a little bit of a disappointment, and I'm sure and but you know. Ho! People that
00:12:37.350 --> 00:12:56.690 Jeff: go forward with the Vegas nerve. They hope that at least they can maybe go down on the dosage a little bit, and I don't think that was the case with him. Actually, I think he had some more serious seizures, and he had I think, maybe broke his arm or something
00:13:01.130 --> 00:13:06.800 Jeff: like that. And the you know, on the full dosage and stuff like that. So okay.
00:13:06.850 --> 00:13:08.659 Frank R Harrison: alright. And then so basic.
00:13:08.910 --> 00:13:18.209 Frank R Harrison: Yeah, I think I lost you for a second. But you pretty much mentioned that with the medications he continued to have seizures, and then I guess he was starting to suffer from
00:13:18.230 --> 00:13:24.740 Frank R Harrison: comorbid mental, you know, not disorders, but comorbidities such as depression, anxiety.
00:13:24.770 --> 00:13:32.420 Frank R Harrison: other kinds of I wouldn't call it Ptsd. But I'm sure that if he's had nocturnal seizures, which is seizures while you're sleeping.
00:13:32.450 --> 00:13:58.450 Frank R Harrison: he probably would wake up in the strangest places like on the floor next to his bed, or probably even in the bathroom. God forbid! But the point is, it does traumatize some, you know. Strange nocturnal seizures, I mean some of his nocturnal seizures were not just having a a seizure in bed, he would sleep, walk around and wander around, and you know so I mean that
00:13:58.450 --> 00:14:22.949 Jeff: that's I would say, the not your typical nocturnal seizure, you know. Maybe you would wander around your room, but I think he he would walk far distances. So you know, I mean, it's hard to say with him. Not being here. I he would have to clarify some of these points for me so, but based on what you've said, I can see why he became a candidate, and why I think
00:14:22.950 --> 00:14:31.660 Frank R Harrison: he may have done the best thing by opting for that procedure. So when we return, we're going to talk more about Vegas nerve surgery and the vagus nerve stimulator.
00:14:31.680 --> 00:14:44.269 Frank R Harrison: As we are discussing this stage of epilepsy which is living with irretractable epilepsy and using the vagus nerve stimulator to live a better quality of life
00:14:44.370 --> 00:14:57.450 Frank R Harrison: with it, that all being said, please stay tuned as we're discussing that here, Jeff and I, right here on talk radio and Nyc and on Linkedin Facebook Youtube and twitch TV, we'll be back in a few.
00:17:02.820 --> 00:17:08.859 Frank R Harrison: hey, everybody, and welcome back. I'm now going to share my screen with all of you, so we could discuss a little bit about
00:17:08.880 --> 00:17:11.199 Frank R Harrison: what the vagus nerve stimulator
00:17:11.349 --> 00:17:12.290 Frank R Harrison: it
00:17:51.900 --> 00:17:52.870 Jeff: hey?
00:18:00.150 --> 00:18:03.879 Frank R Harrison: You cannot hear me. It muted my microphone.
00:18:04.110 --> 00:18:12.440 Frank R Harrison: Okay, so for those people, what happened there? Well, I was reading what I was sharing, but it muted my microphone, so
00:18:12.450 --> 00:18:33.050 Frank R Harrison: at least I will be using all of my displays during the commercial break. But I have done for everyone out there. If you saw the little square of me on the corner talking and mouthing the words I was reading all about Vegas nerve stimulation again, if you didn't hear me, or if you didn't read along
00:18:33.130 --> 00:18:53.619 Frank R Harrison: at when you get a chance, go onto Wikipedia, search it, and it will explain what it is used for. The big takeaway for me was understanding that not only do individuals with refractory epilepsy or medication, resistant epilepsy are candidates for Vegas nerve stimulators. But so are those suffering from major forms of depression.
00:18:53.640 --> 00:18:56.750 Frank R Harrison: There's major depressive disorder. There's bipolar disorder.
00:18:56.760 --> 00:18:59.540 Frank R Harrison: of course, many other kinds of mental health
00:18:59.960 --> 00:19:01.470 Frank R Harrison: issues that just
00:19:01.520 --> 00:19:11.839 Frank R Harrison: have you in a different way. And in order to improve your quality of life, you have to really consult with your neurologist or psychiatrist and determine if you're a candidate for such.
00:19:12.010 --> 00:19:31.160 Jeff: but that I was gonna mention some other things, I mean, it's considered one of the most important nerves of the body and the Vegas nerve, it regulates the electrical signals in the brain, and since epilepsy is defined as a electrical misfiring or disturbance.
00:19:31.160 --> 00:19:55.389 Jeff: you know that that's why, they made the connection between, you know, the Vegas nerve and epilepsy, and the device was developed because of epilepsy. But the the biggest nerve is connected to many bodily functions. And it, the hope is to use it to help problems with digestion immune system diabetes, heart problems. And
00:19:55.390 --> 00:20:22.440 Jeff: of course, like you said depression, you know. And and with, you know, I was gonna say that in 2,019 was under 10% in in America. And now it's over 30 now. So you know, depression. II hate to say it, but I don't think it's going anywhere, you know, with our culture. And you know, I think that's why, you know.
00:20:22.440 --> 00:20:34.439 Frank R Harrison: they're trying to make more alternatives and options for people. Yeah. So yes, yes, I mean we. I always like to say, especially when we've done shows, together with our dear friend Danielle.
00:20:34.650 --> 00:20:36.949 Frank R Harrison: who was a candidate for surgery
00:20:37.180 --> 00:20:51.110 Frank R Harrison: turned out that, you know, with all the further research, and also appearing on our show together, she decided against it. And I'm really glad, because, if anything, it was just a constant fluctuation of various medications, and finally she was able to take on
00:20:51.370 --> 00:21:00.339 Frank R Harrison: a new one, which I forgot the name of it. I know you recall it, but it took away Vimpat, which was also adding to the confusion between the new drug.
00:21:00.890 --> 00:21:03.719 Frank R Harrison: You know I know she's doing Kepra, and she's doing
00:21:03.840 --> 00:21:06.899 Frank R Harrison: something that I knew began with an
00:21:06.980 --> 00:21:30.350 Frank R Harrison: ex scope. Re, that's right. So I think I mean, a lot of people have had success with that. But I she was one of the few that didn't have success with it. Unfortunately, yeah, I mean, and people that do that don't have success with that. They have, some bad side effects. Right? Right? Yeah. So hold the picture again of of Jesse.
00:21:30.460 --> 00:21:45.839 Jeff: So that is more of an understanding, because I think when I saw the picture originally he looked like he was being prepped for surgery. Looks like the hospital. I think that was during his Vegas nerve surgery. Yeah. So yeah, around that time, at least. Yeah. So
00:21:45.910 --> 00:22:01.280 Frank R Harrison: yeah. So I mean, overall, what would be from what he's told you his circumstances to why the medicine was not working. Was it? A genetic component, or maybe his comorbid anxiety or depression that prevented it, or some other situation.
00:22:02.320 --> 00:22:30.709 Jeff: Well, II think that it sometimes. You know, they don't really just don't know. Why people are, you know, resistant to them medication. It's you know, a lot of times the body might take it as a an outside poison. And maybe metabolizes it quickly. And and it just isn't effective.
00:22:31.090 --> 00:22:35.110 Frank R Harrison: Yeah, because if it's metabolized quickly, it's as if it never went through you. It's like water.
00:22:35.230 --> 00:23:03.170 Jeff: Yeah, exactly. And people that have a test metabolism. And and sometimes you know the brain. You know just it, it doesn't get there. And you know, or I mean, that's my theory, I mean, I you know, I have been through all these medications and a lot of times I've had reactions to them. And you know, it's it's like my body thinks it's a poison.
00:23:03.170 --> 00:23:19.499 Frank R Harrison: you know, so interesting. Interesting. And I guess we all, we always know that they're coming up with new techniques to try to even get genetically programmed medications based on the individual patients, DNA. And in the world of AI that we're coming more and more into. It's
00:23:19.500 --> 00:23:36.180 Frank R Harrison: it's a continuation of trying to stop seizures rather than cure them, which is always going to be debatable in the medical profession. We just have to see what the future is, and whether or not they finally come up with any kind of cure that may involve the same type of issues like the Mra vaccine did with Covid.
00:23:36.300 --> 00:23:48.700 Jeff: you know. But that'll be, and you have to keep in mind that one third of epilepsy patients. Don't respond to anticipals. So it's it's a large percentage, actually.
00:23:48.700 --> 00:24:08.099 Jeff: And and they are forced to seek out other treatments, and and not many no. Well, I don't wanna say not many, because, you know now it's become more well known the Vegas nerve stimulator. But they're now starting to say, Hey, le, let me give this a try.
00:24:09.340 --> 00:24:25.039 Frank R Harrison: Interesting? Well, I mean that all being said, would it be safe to say that Jesse was an individual that developed it again as a child, but maybe as a comorbid reaction to a concussion or a head injury, or did it just come on one day.
00:24:25.120 --> 00:24:27.040 Frank R Harrison: I mean, do you know anything about that?
00:24:27.720 --> 00:24:55.189 Jeff: Well, those are things I've discussed with them, but you know, II don't recall all the things that he he told me. But you know there was. You know definitely things that he didn't know about it. I mean, he just found this out recently, I mean, in the last couple of years. So you know he he was like Vegas. No stimulator. What is that? What is the biggest nerve? He didn't know what it was. So
00:24:55.500 --> 00:25:02.860 Jeff: because I've always believed that people who are medication resistant
00:25:03.250 --> 00:25:09.669 Frank R Harrison: in more, and I could be wrong. So you clarifying, for example, one third of the epilepsy population
00:25:09.730 --> 00:25:19.830 Frank R Harrison: are medication resistant. But I always thought that those that were medication resistant really? Were not epileptics at first, that they had some other neurological difficulty.
00:25:20.010 --> 00:25:31.860 Jeff: that triggers seizure activity, and because the medication possibly could be a brain instability, or they were were. The brain was
00:25:31.860 --> 00:26:01.369 Jeff: was vulnerable to something, and then something like a brain trauma, a a a head, you know a head trauma or a a toxin, or let's say something yeah, I may food allergies. Something brought it on. Yeah. So yeah, either way, just wanna let everyone know that. Yes, Jesse has given us permission to talk about his personal story.
00:26:01.400 --> 00:26:08.829 Frank R Harrison: I mean, if he was here he would tell it himself, obviously. But we were being mindful of his privacy as well as
00:26:09.100 --> 00:26:13.239 Frank R Harrison: his desire to still recover in peace. So we didn't want to create the
00:26:13.260 --> 00:26:41.079 Frank R Harrison: anxiety for him being here on the show today. But who knows? Maybe as time passes we can have him come back as a follow up, you know, because I'm sure, as we continue throughout the rest of the show, we're gonna talk about other aspects of the consequences of living your life with the vagus nerve stimulator you already met. We already touched upon some of the mental aspects you mentioned earlier about the magnet. I think you mentioned rash or skin aspects could become involved.
00:26:41.080 --> 00:26:57.150 Jeff: Yeah, there, there definitely to be side effects and that was something I was going to address, I mean? I think that he said that he was having some difficulty swallowing, because, really
00:26:57.150 --> 00:27:22.150 Jeff: I it's a close to other the back of your throat or something. III don't know it. It impacts your your throat is so yeah, possibly problems with speaking. But that that's usually a temporary side effect. So you know, there and usually there is a some skin irritation where you put the magnet, and of course, since
00:27:22.150 --> 00:27:27.950 Jeff: there's a small incision there, there's a risk of infection. And
00:27:27.950 --> 00:27:35.759 Jeff: so there and when you, since they're implanting a device people
00:27:36.190 --> 00:28:00.670 Jeff: they're they're worried about maybe airport security or am I gonna be able to go through security? And yo, yeah. And so you, you get a card from the doctor, and they're just usually security is okay. But you can show the people that wave those scanning ones and some. And you, you're usually able to pass through
00:28:00.870 --> 00:28:02.240 Jeff: fine. Yeah. So
00:28:02.500 --> 00:28:06.079 Frank R Harrison: alright, we're gonna take our next break. And when we return
00:28:06.100 --> 00:28:33.209 Frank R Harrison: I've figured out the secret in how to keep my voice going while reading it. So I may actually do that just to see that it. I've learned my technical lesson, this episode of frank about health. So everybody, please stay tuned as we return, and we talk not only about the Vegas nerve stimulator and the Vegas nerve itself, but also we'll talk more about Sudep, which we touched upon earlier, right here on Frank, about health.
00:28:33.360 --> 00:28:37.950 Frank R Harrison: on talk, radio, dot Nyc and our social. So we'll be back in a few.
00:30:39.170 --> 00:30:55.489 Frank R Harrison: okay, everybody. I'm taking a risk. I believe you're all hearing me right now, as I feature right here on the screen, all about sudden unexpected death and epilepsy. Now, I gather, Jeff, is this one major side effect of those individuals that
00:30:55.510 --> 00:30:59.239 Frank R Harrison: hopped to dig the vagus nerve stimulator surgery.
00:30:59.340 --> 00:31:01.309 Frank R Harrison: or to have it installed in their brain.
00:31:02.230 --> 00:31:25.410 Jeff: Well, I would say that people that are at risk for sued up are, usually a candidate, because they they've had seizures for a long time, you know, many times they are diagnosed early. Usually, those are risk factors. So yeah, it's a yeah. You see, the people that are candidates for Vegas nerve.
00:31:25.410 --> 00:31:38.340 Jeff: You know, some of the things that go with that, you know, those are the risk factors, also nocturnal seizures as well. So you know, they're usually also risk factors for suitable.
00:31:38.710 --> 00:31:47.909 Frank R Harrison: interesting. So I'm just gonna read this out loud, and I hope you all hear it. Suda, or sudden, unexpected death in epilepsy is set to occur when a person
00:31:48.010 --> 00:31:53.089 Frank R Harrison: with epilepsy dies unexpectedly, and was previously in their usual state of health.
00:31:53.180 --> 00:31:57.439 Frank R Harrison: the death is not known to be related to an accident or seizure emergency.
00:31:57.560 --> 00:32:04.699 Frank R Harrison: such as status epilepticis. I mean, I gather that's when you're having seizures for like 5, 10 min, or something like that.
00:32:04.900 --> 00:32:08.570 Frank R Harrison: When an autopsy is done. No other cause of death can be found
00:32:08.640 --> 00:32:21.280 Frank R Harrison: each year about one out of 1,000 adults and one out of 4,500 children with epilepsy die from Sudep. However, it occurs more frequently in people with epilepsy whose seizures are poorly controlled.
00:32:22.040 --> 00:32:31.289 Frank R Harrison: that pretty much echoes what you just said. I can truly see why that Jesse opted for that. He didn't want to be
00:32:31.910 --> 00:32:38.420 Frank R Harrison: a patient dying in his sleep. I'm sure of that. I mean, I can speak personally, and I don't mind sharing this with people.
00:32:38.460 --> 00:32:44.179 Frank R Harrison: but I almost died from having a seizure in my own bathtub when I was 17,
00:32:44.200 --> 00:32:53.050 Frank R Harrison: and that's when I was finally diagnosed with epilepsy, even though I had 5 seizures beforehand and denied that it was even epilepsy, it took almost
00:32:53.490 --> 00:33:04.949 Frank R Harrison: the end of my life to finally take my first dose of Dilanton and realize, okay, this is a new chapter I'm going to be living with, and have been successfully, especially over the last 20 years.
00:33:05.030 --> 00:33:08.530 Frank R Harrison: maintaining seizure free or maintaining my life seizure free.
00:33:08.560 --> 00:33:15.980 Frank R Harrison: But in his case, from what you described I can see what that Sudep was probably one of the key motivators for him. Correct?
00:33:16.480 --> 00:33:41.259 Jeff: Yeah. And I mean researchers and neurologists. I think they have a a hard time assessing the risk factors of Suda. Because a lot of times when people are having seizures frequently, they don't necessarily want to report it to their neurologist because the neurologists is, gonna you know, raise the medication, you know, and and a lot of people they don't want that. They even if
00:33:41.260 --> 00:34:06.150 Jeff: when they're having seizures because it's just gonna be in more more side effects, or they it. They they might think that the medication might not be working. It's not gonna help. And so, or they, the neurologists might say, I wanna change your medication. So they don't report it so. And it, they've had a lot of trouble with actually defining it, assessing the risk factors. And
00:34:06.150 --> 00:34:17.799 Jeff: you know. So a lot of you know, I think neurologists maybe are too quick with the prescription pad to be like, Hey, okay? So I want to raise this medication.
00:34:18.070 --> 00:34:22.400 Frank R Harrison: Hmm, amazing. Wow! So now
00:34:22.620 --> 00:34:23.920 Frank R Harrison: he
00:34:23.960 --> 00:34:26.580 Frank R Harrison: Jesse only had the surgery last week you said
00:34:27.350 --> 00:34:47.570 Jeff: well, I know he was supposed to go back for an update, because many times they they have the surgery, but they don't activate the device right away. They they just see ma make a make sure that the person is healed, and then they ask them to come back.
00:34:47.570 --> 00:35:09.290 Jeff: And then they activate the device and and maybe adjust the frequency depending on the patient. But the person continues to come back for frequent monitoring of of the device, whether it's to change the frequency, or just to see how the patient is doing
00:35:09.290 --> 00:35:27.020 Jeff: with the device, if you know, they need anything, or if they need, if they need to change any of the frequency. I mean, I don't know. I'm not an expert on it, but II believe that's why they they you need to see your doctor more often. If you have the device, because you need
00:35:27.020 --> 00:35:45.899 Jeff: to make sure that the battery doesn't run out. I believe that the battery only lasts one to 15 years so, and that's a small surgery, too. So they if the battery goes out, you you need to have a small surgery to replace it so
00:35:46.120 --> 00:35:54.019 Frank R Harrison: right now that being said, do you know if he's already, if he's still in the healing process and has not yet
00:35:54.150 --> 00:35:56.979 Frank R Harrison: use the simulator when necessary.
00:35:57.260 --> 00:36:05.730 Jeff: Well, II believe that he he healed from the surgery, but I think that he's had some injuries from seizures. So
00:36:06.640 --> 00:36:13.490 Frank R Harrison: you mean injuries with the device in his brain or no. No, no, wait. Injuries from having seizures.
00:36:13.630 --> 00:36:18.810 Jeff: Yeah, like, a yeah. Yeah. Hurt himself from seizure.
00:36:19.600 --> 00:36:23.309 Frank R Harrison: So I mean, I guess what I wanted to. If if you could explain.
00:36:23.490 --> 00:36:30.419 Frank R Harrison: explain to the audience and viewers out there what kind of utility the stimulator does to the vagus nerve.
00:36:30.480 --> 00:36:35.029 Frank R Harrison: and how it minimizes the seizure activity. I gather we really don't have.
00:36:35.130 --> 00:36:42.460 Frank R Harrison: Jed sees self so self-witness testimony because it sounds like he hasn't yet activated it because he's still healing.
00:36:42.520 --> 00:36:48.750 Frank R Harrison: so can I mean you sent me a whole list of effects that it has on the vagus nerve. I'm wondering if you could
00:36:48.820 --> 00:36:50.680 Frank R Harrison: summarize that for everyone
00:36:51.580 --> 00:37:02.440 Jeff: summarize, so that what kind of effects it has? Well, I mean, if you stimulate the biggest nerve.
00:37:02.660 --> 00:37:08.720 Jeff: it will, it will send the an impulse to the brain. Yeah.
00:37:08.820 --> 00:37:11.570 Frank R Harrison: stop a seizure.
00:37:11.890 --> 00:37:24.220 Jeff: Yes, it will. I'm that's that's the reasoning behind it. I mean it. It might not always be the case. It has to have the right frequency, you know, depending. So that's why they need to adjust. Yes.
00:37:24.450 --> 00:37:34.079 Frank R Harrison: Oh, okay. So in other words, if it. Let's pretend it's low, medium, and high as frequencies. If, for example, it said it medium, and the seizure frequency went from
00:37:34.140 --> 00:37:36.139 Frank R Harrison: 10 a week to 3 a week.
00:37:36.310 --> 00:37:44.300 Frank R Harrison: Then we know that maybe it has to be jested a little higher so it could bring it down to one a week, or maybe one every month, or something like, or maybe none.
00:37:44.480 --> 00:37:50.539 Frank R Harrison: So that kind of thing is what like a 30 day or 60 day trial period, once they have it
00:37:50.630 --> 00:37:52.740 Frank R Harrison: surgically implanted in their brain.
00:37:53.440 --> 00:38:04.360 Jeff: Well, it it's a it's an on the Vegas nerve. It's a it's an implant on on the nerve. It's not in the brain. But it's like a Yeah, it's a but it
00:38:04.360 --> 00:38:27.319 Jeff: mit Ctl, and it's a long. The biggest nerve is very big, and it has many branches. So the when you're going through the tests. And usually you go through Eeg, monitoring 24 h to see what your seizure activity is. You usually go for an MRI before you get the device implanted.
00:38:27.320 --> 00:38:33.209 Jeff: and a few other tests depending on the person they scope out, or they they map
00:38:33.210 --> 00:38:39.889 Jeff: the vagus nerve of the person so, and it's one of the biggest nerves in the body so
00:38:40.600 --> 00:39:07.520 Jeff: amazing. You know. It's funny. I guess I was confusing it with the amygdala, which I know is at the base of the Pitu Terry gland. So the thing is is that the Vegas nerve is really up here above your heart above your. And it's a it's maybe supposed to help people with heart problems, too. So yeah, and digestion to. And you know many different things. Yes.
00:39:07.570 --> 00:39:10.759 Frank R Harrison: I mean the biggest.
00:39:11.230 --> 00:39:17.319 Jeff: Yes, it's the impulses. Yeah, it's a big nerve, and it affects a lot of different parts of bodies.
00:39:17.970 --> 00:39:32.159 Frank R Harrison: Incredible. So I. You know what it sounds like me not having spoken with Jesse as you have. Sounds to me that he's on the right track. I really hope that he gets to get the full efficacy of the vagus nerve stimulator, and that it
00:39:32.210 --> 00:39:37.910 Frank R Harrison: minimizes or controls his seizures outright. But, like you said, he still has to take his medications along with it. Correct?
00:39:38.350 --> 00:39:57.229 Jeff: Yeah. And that's been part of the reason why I haven't done it, I mean, and you know. II asked them about the the cosmetic issue, because really, I didn't want the incision on my chest that I didn't. I didn't want to go through that. And I didn't want to have the problems with the
00:39:57.380 --> 00:40:26.050 Jeff: I already had some throat issues, so I didn't want to go through that with the surgery. So I've yeah. I've had problems, the side effects with medications of, you know. Maybe a you know, a sore throat and maybe a cough, and you know that was with the on fee. But if you know, if it impacts the throat, you know II was not willing to go through that and have throat issues for a long time. Because, you know, that's you know,
00:40:26.120 --> 00:40:29.799 Jeff: a a big risk to for the Vegas nerve. So
00:40:29.980 --> 00:40:57.280 Jeff: right. So what is your take, though, on meditation as well as even mental health and therapy? Well, Jesse have to undergo those techniques in addition to well, I was gonna mention this before. People go forward with the Vegas nerve device with their neurologist or whatever doctor they're seeing, you know, they should discuss some of the natural ways of stimulating
00:40:57.280 --> 00:41:22.890 Jeff: the vagus nerve, and there are many natural ways of stimulating it. And some of those things are are are very simple. It might be, just the cold pack on the back of your neck, or and or the back of your arms, and that, or a cold shower which a lot of doctors don't recommend. If you have heart problems or you're you're suffering or you're at risk for heart disease.
00:41:22.890 --> 00:41:49.279 Jeff: But you know, that will stimulate the Vegas nerve, you know a cold shower or a call pack, you know th that's the main, the number one re way to stimulate the Vegas nerve. And but there are many natural ways singing and chanting, I guess, is another way that people stimulate the Vegas nerve along with meditation and yoga
00:41:49.280 --> 00:42:09.350 Jeff: and deep breathing, deep breathing exercises. And you know, so there, there is a a good amount of natural ways to do it. And yeah. So the doctor, I think, should be obligated to go over these natural ways before you a actually go forward with surgery.
00:42:09.640 --> 00:42:14.959 Frank R Harrison: Right? Right? And for you, Frank, about health viewers out there. If you remember, I did. 2 shows
00:42:14.980 --> 00:42:24.070 Frank R Harrison: one in May of 2022, with Katherine Chadwick, who talked with me and my co-host, Phyllis Quinlan about the sunshine quotient.
00:42:24.290 --> 00:42:40.680 Frank R Harrison: which was a meditational technique to close your eyes and breathe in the sunlight and feel the heat and the rays of the sun. Stimulate your vagus nerve and breathe out that heat that's generated from that. And all of a sudden you feel relaxed and sedate.
00:42:40.780 --> 00:43:01.540 Frank R Harrison: and it has worked for me a lot. So I want all of you out there. If you want to refer to the previous episode, it's it's on our Youtube channel and on our Facebook channel. But more importantly, also check out Katherine Chadwick and the sunshine quotient. And then the other thing is, there's a couple of weeks ago I had Mauri Zelkovich come on, and we were talking about
00:43:01.600 --> 00:43:14.169 Frank R Harrison: these headphones, these bone conduction headphones. Again, we did a show about Alzheimer's disease, and how it helps to break down the amyloid proteins. But maybe one of the natural ways that something like
00:43:14.240 --> 00:43:16.369 Frank R Harrison: that's that's someone like
00:43:16.660 --> 00:43:17.910 Frank R Harrison: like
00:43:18.140 --> 00:43:39.590 Frank R Harrison: getting his name. Jesse. I almost said Justin, forgive me, but maybe what he could do like you said music if he lists to music, and it's not even on the ear buds. Maybe that'll also help in keeping him relaxed and maybe depending on the frequency of his Vegas nerve stimulator. This could help supplement it and still minimize
00:43:39.600 --> 00:43:42.340 Frank R Harrison: the risk of seizures. But, as you see.
00:43:42.700 --> 00:43:47.559 Frank R Harrison: we're headed to our final break. and I wanted to just tell everybody. Keep in mind
00:43:47.950 --> 00:43:52.399 Frank R Harrison: what Jeff and I have been talking about is the case of one person
00:43:52.580 --> 00:43:53.840 Frank R Harrison: name Jesse.
00:43:53.890 --> 00:43:57.170 Frank R Harrison: who is now installed into his brain
00:43:57.190 --> 00:44:07.610 Frank R Harrison: the vagus nerve stimulator to stop his seizure activity from being at the level. It's been because his medications he has been resistant to. But there are more.
00:44:07.670 --> 00:44:25.690 Frank R Harrison: Then one waste skinny cat, and in this case it's to stop seizures. And we're talking about a combination of the medication, the Vegas nerve stimulator therapy, and and the other types of meditation, and then improves your mood, too. You know their energy, too. Yeah, so
00:44:25.690 --> 00:44:39.929 Frank R Harrison: exactly. We definitely also want to keep, not just quality of life in check, but also the state of one's mental health especially. Never mind post ectol, but post surgery. I can imagine that in itself is a trauma that I know
00:44:40.270 --> 00:44:53.610 Frank R Harrison: other people that have been candidates for have avoided because they don't want to experience those potential traumatic effects as a result of the surgery. But I gather, you know, depends on the individual patient and what they're going through. Sometimes it's just
00:44:53.690 --> 00:45:00.960 Frank R Harrison: that's the last best effort, and it probably is the best decision for them. All right, when we return right here on Frank about health.
00:45:01.060 --> 00:45:10.700 Frank R Harrison: we're gonna talk about our special guest here, Jeff Dimitrack and his future, not what he's done just done on Frank about health, but what he's doing with his
00:45:10.720 --> 00:45:22.530 Frank R Harrison: publish material that we had him here discuss on the first show that he's dead last December, and anything else that you have not yet told me about, that you want to share with everyone.
00:45:22.820 --> 00:45:26.239 Frank R Harrison: when we return. So everybody stay tuned. We'll be back in a few.
00:47:29.530 --> 00:47:44.110 Frank R Harrison: hey, everybody! Thank you again. For the last 45 min we've been talking about the case of Jesse and using the vagus nerve stimulator, which to me is still an intriguing issue, even though I've been living my life with epilepsy for 2 thirds of my life.
00:47:44.170 --> 00:47:50.870 Frank R Harrison: but I guess, having been lucky to have it controlled with medication and other than
00:47:50.880 --> 00:47:54.750 Frank R Harrison: partials every now and then, which I've still been able to deal with and cope with.
00:47:54.840 --> 00:48:03.440 Frank R Harrison: I'm kind of like a student here, Jeff, and I want to thank you for not only talking about Jesse in his case, but also
00:48:03.660 --> 00:48:08.619 Frank R Harrison: all the other cases that we've discussed since last December, when you first came on Frank about health.
00:48:08.720 --> 00:48:14.129 Frank R Harrison: so that, all being said, tell me what? What is your plan? Going forward?
00:48:14.140 --> 00:48:15.630 Frank R Harrison: First your book
00:48:15.670 --> 00:48:20.179 Frank R Harrison: dating in the dark, and then, of course, also the walks that you've done.
00:48:20.620 --> 00:48:32.930 Jeff: Tell us what else is happening. Well, yeah, I mean, it's been a while that dating in the dark has been out, but II never got the audible version out.
00:48:32.930 --> 00:48:52.719 Jeff: So I I'm excited to be having that release because a lot of people we're asking about the audiobook. And oh, can I listen to it? So I will. So I in a couple of weeks the audible version of dating in the dark will be released.
00:48:52.720 --> 00:49:03.440 Jeff: and I'm hoping all who have an audible account will check out the audio book with the renowned narrator, Molly. So cowers
00:49:03.540 --> 00:49:16.109 Jeff: and Nat, she's going to be narrating my book and I'm honored to be able to have an advertisement of my book along with the Mo Molly
00:49:16.130 --> 00:49:45.730 Jeff: and I'm happy to have her, and Molly, she has done over 50 books, and her voice is wonderfully captivating, and I'm happy that. She read my story, and such a beautiful and eloquent way, and she has done everything from romance to self-help, and knows how to make characters come alive to her audiences. Much of the story is about how the women I've dated
00:49:45.730 --> 00:50:07.710 Jeff: reacted, and we're sometimes traumatized by my many seizures. Molly does a spectacular job at portraying their personalities, and, more importantly, when you listen, you you feel the emotions with her voice in the, in the book she helps audience. Audiences experience, courage.
00:50:07.710 --> 00:50:23.840 Jeff: confidence, fear, sadness, frustration and a a number of other intense emotions. So I'm looking forward to its release on October fifteenth and a special thank you to Molly Secowers. So
00:50:23.840 --> 00:50:39.949 Frank R Harrison: I gather, you see that I have her website right in front of everybody so that they can know to search her background. I was looking at her background a little bit before the show began. And I gather you're aware she spoke on Capitol Hill with Nancy Pelosi about different healthcare reforms
00:50:40.090 --> 00:50:41.539 Frank R Harrison: for our society.
00:50:41.550 --> 00:51:11.250 Jeff: Well, yeah, I mean, she's pretty popular. So II III and she was wrote me such a kind message she was one of my auditions, and I said, well, I'm gonna go go for it, because, you know, she she's so great and her voice is so great. And I I'm really just so pleased to have her. And I I'm just really looking forward to the the audio book release?
00:51:11.680 --> 00:51:17.770 Frank R Harrison: When when did you have that first conversation with her? Was only a few weeks ago, or was it like in the early part of this year.
00:51:18.330 --> 00:51:46.449 Jeff: No, I was just a little while ago, because, you know, I just had a a little bit of you know, I mean, this is my first book. So II just had to get the details together. I would have liked if it came out at the same time, you know, cause my book has been out for quite some time, so I would have liked it to be out a year ago. I mean, it's coming up on almost the year anniversary of my book. So so it's a you know, but better late than never.
00:51:46.450 --> 00:51:58.749 Frank R Harrison: Well, not only that it it. It's not. It's not considered the the second edition or the revised edition. It's now considered the audio edition, and I mean, if anything, it's setting you up for your ongoing.
00:51:58.760 --> 00:52:23.050 Frank R Harrison: following followers at your your Instagram stages of epilepsy. I know other than your awareness of the various epilepsy months that we are celebrating between October and November. You said you were going to be engaged in other kinds of walks over the over the remainder of the year. Correct with the epilepsy foundation. Well, next year, and and I'm gonna be having a book signing on November eighteenth.
00:52:23.050 --> 00:52:47.680 Jeff: you know, with with Josie Josie Martinez, she's gonna be coming to Tom's River, and maybe you can come to and cause we're gonna try to have a few people speak some, maybe motivational speakers, and maybe some specialists that has to do with the Ketogenic diet. So maybe it will be the Epilepsy conference you've been waiting for.
00:52:47.680 --> 00:52:58.329 Frank R Harrison: Yes, I do, it would be fun, I mean, believe it or not. November is an interesting month for me. It's not only my
00:52:58.330 --> 00:53:03.440 Frank R Harrison: my birthday month on a Thursday, so I'll actually be doing an episode on my birthday.
00:53:03.510 --> 00:53:17.180 Frank R Harrison: But, it is also. This will be a Saturday, November the eighteenth is a Saturday. It's a week before Thanksgiving, a week after veterans day weekend. So it's like in between the holidays. And
00:53:17.200 --> 00:53:44.609 Jeff: and II have a bunch of materials about seizure. First aid. I have a bunch of pamphlets about medications and migraines, and so there's gonna be a epilepsy information sharing session as well. So you know. And right now it's just advertising it. My book and Josie's book. But W. We're expected to have other authors there as well. 2 other authors. So
00:53:44.920 --> 00:53:51.980 Frank R Harrison: all right. Great, I mean, the irony is is that literally the eighteenth is 2 days after
00:53:52.060 --> 00:54:13.469 Frank R Harrison: my one hundredth episode of Frank about health. So there'll be a lot of interesting things to promote and celebrate at the same time, you know. But but, more importantly, I just want to say that we've been on a semi journey together since last December, when you first appeared on Frank about health, and I'm glad to see that you've gone from just telling your story all the way to helping contribute to
00:54:13.470 --> 00:54:39.590 Frank R Harrison: what was originally gonna be called frank about epilepsy. But you've been able to really move it in a different direction, a more learned direction, and a search towards a cure, and things that I really was not in a position to help, promote or advocate. While I have been advocating other health issues on Frank about health. As you know, you're able to take the epilepsy component of what I've been trying to do on the network
00:54:39.690 --> 00:55:05.339 Frank R Harrison: and on social media to the level it needs to be at. Everyone needs to be informed, especially when we are living in a much more chaotic world, even before Covid, you know, since Covid, it's become more chaotic. So as a result, you're you're becoming more of a valued influencer. And I'm looking forward to hear more about when the audio book is released. Not to mention, of course, what happens on the eighteenth of November.
00:55:05.440 --> 00:55:21.190 Frank R Harrison: and I know that you're helping, you know. Give exposure, Frank, about health on our Instagram, on on the Instagram platform. So you've been helpful to this show, and then I know you've been talking about doing your own podcast as well. So I gather, that's probably slated for next year. Sometime.
00:55:21.500 --> 00:55:45.149 Jeff: Yeah, so and we'll have more details, and we'll we'll kind of map out the schedule of what November eighteenth is gonna be about and maybe at some point you can promote it on your other, Frank, about help shows. Once we get closer to the date, because, you know, it's in Tom's River, New Jersey. I'm
00:55:45.500 --> 00:56:09.640 Jeff: I've moved to this area. But I'm not originally from this area. So I'm JI I've been communicating with some people. Linda. Say, Hey, come to the book signing, but they they don't necessarily know me that. Well, so and but it's gonna be a good time. We're gonna have have refreshments included and did. And Josie is, gonna of course, come down from New York. And
00:56:09.640 --> 00:56:19.490 Jeff: yes, she's gonna we're gonna have a good time. And it's gonna be a lot of information about epilepsy, and it's gonna be epilepsy awareness month in November.
00:56:20.170 --> 00:56:24.939 Frank R Harrison: Awesome. Now you gotta forgive me. I know Josie was when Fuzzy feels lucky.
00:56:25.090 --> 00:56:27.580 Frank R Harrison: But the patient we had today
00:56:27.740 --> 00:56:28.640 Frank R Harrison: was
00:56:29.280 --> 00:56:50.120 Frank R Harrison: II? He had one name, and I and I kept messing it up. Jesse and Josie, you've got a lot of jays in your life, after all. Your name is Jeff Alright. Ladies and gentlemen, this is the end of this episode. We wanted to wrap it up very lightheartedly, but, as you can see, Jeff to me, Trek is really moving forward towards
00:56:50.120 --> 00:57:04.889 Frank R Harrison: helping us find all the necessary advocacy and support and solutions for epilepsy, living life with it, or even needing assistance in living a better quality of life with or without medications. Among other comorbidities, especially mental health.
00:57:04.940 --> 00:57:15.070 Frank R Harrison: I know we're going to be doing another show together within the next 4 weeks. We'll figure that out as time passes. But, ladies and gentlemen, tomorrow's latest shows begins at
00:57:15.160 --> 00:57:20.300 Frank R Harrison: 10 in the morning with philanthropy and focus with Tommy D. 110'clock.
00:57:20.320 --> 00:57:33.880 Frank R Harrison: We're gonna have Stephen Fry's always. Friday. 120'clock will be intangi with Matthew Asbel, and 10'clock. We close out the week with the hard skills and drama. Branku and I'll be back again next Thursday at 5 0 PM.
00:57:34.190 --> 00:57:40.320 Frank R Harrison: I think I know who Bike Guest is, but since I haven't confirmed anything, I will just disclose it when the time comes.
00:57:40.400 --> 00:57:50.280 Frank R Harrison: Thank you again for being here on this episode of Frank about health on our Youtube channel, Facebook channel, Linkedin Channel. And of course, twitch TV.
00:57:50.510 --> 00:58:00.270 Frank R Harrison: I look forward to seeing you all next week. We're signing off now, Jeff. Thanks again as always. Thanks again. Logan is always. We'll see you all next week. Take care!
00:58:00.740 --> 00:58:05.850 Jeff: Thank you.
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